Dystrophic epidermolysis bullosa Dystrophic Epidermolysis bullosa (DEB) is one of the major forms of EB. This rare inherited disease is characterized by cutaneous and mucosal fragility that cause generalized blistering of the skin and superficial ulcerations. For the moment, there is no cure for DEB. Treatment generally focuses on managing symptoms. It is then important to …
Search Results for: epidermolysis bullosa
Epidermolysis bullosa simplex
Epidermolysis bullosa simplex Epidermolysis bullosa simplex (EBS) belongs to the group of hereditary epidermolysis bullosa. This disease is characterized by fragility of the skin that results in blistering lesions on the skin which most commonly occur at sites of friction. It usually appears at birth or shortly thereafter. To relieve people with epidermolysis bullosa simplex, …
Epidermolysis bullosa
Epidermolysis bullosa Epidermolysis bullosa is characterized by a problem of junction between the epidermis and the dermis, which results in a bullous detachment and a skin abrasion. Skintifique has developed extremely efficient, safe and pure skin care products which provide intense and long-lasting moisturizing and soothing, and help repair skin suffering from epidermolysis bullosa. We know …
Interview of Charlene, who suffers from junctional epidermolysis bullosa
Charlene is 25 and suffers from non-Herlitz junctional epidermolysis bullosa. This is one of the forms of epidermolysis bullosa, a rare disease due to the absence of collagen and other molecules which are essential constituents of the skin and internal organs (for more information on the orphan disease, click here). Charlene has recently graduated from high …
Interview of Camille, 21, who suffers from recessive dystrophic epidermolysis bullosa
Camille is 21 years old and is a student in management. She lives in Brittany. She suffers from recessive dystrophic epidermolysis bullosa, which was diagnosed when she was a few months old. She shares with us her experience with this disease.
Interview of Alexia, 35, who suffers from epidermolysis bullosa : "You need to see the positive sides as much as possible"
Alexia is a young woman suffering from epidermolysis bullosa, a rare disease which strongly affects the skin as well as internal organs (click here to learn more). In spite of her disease, she is constantly looking for new activities and experiences.