Charlene épidermolyse bulleuse - epidermolysis bullosa

Interview of Charlene, who suffers from non-Herlitz junctional epidermolysis bullosa

Charlene is 25 and suffers from non-Herlitz junctional epidermolysis bullosa. This is one of the forms of epidermolysis bullosa, a rare disease due to the absence of collagen and other molecules which are essential constituents of the skin and internal organs (for more information on the orphan disease, click here). Charlene has recently graduated from high school and is preparing to get into college.
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